#13-There’s Something About September

It’s September which means Old Mom really can’t sleep.  It’s not from being back to school.  I’m on my feet all day dancing with the school kiddos and running around trying to get everything done around the house for the few hours a day that I am home.  My body is absolutely exhausted.  I really can’t sleep because September is an awful month for Sweet Boy health wise.  Some years it’s croup.  Some years it’s asthma.  But Sweet Boy always has a hard time in September.

As a teacher, I’m fortunate to have a good bit of sick time.  I rarely used it for the first 15 years.  I only see my students once a week.  Sometimes they get a sub for me.  Sometimes they don’t.  But my students very rarely have a quality musical experience when I’m not there.  So I always feel pressure to be at work unless it is an absolute emergency.  Not from my fellow teachers, but from the sweet faces that ask why I missed their music day.

Then came my boy.  My Sweet Boy who suffers from Asthma, Acid Reflux and complications from a cleft in his larynx.  September is a nightmare for him.  Here in Connecticut, it can be 45 degrees when you wake up in the morning and 80 when you go out to play in the afternoon.  And we get a lot of very humid days.  And the ragweed makes allergy sufferers miserable.  The rapidly changing temperatures and poor air quality are a nightmare for children with breathing problems.

It all starts with the first sniffle or sneeze.  From that point, my ears are on high alert just waiting for the worst.  I know that his coughs will be at their worst at night, so I always feel like I’m just waiting for the worst.  As soon as the first cough arrives, the nebulizer treatments begin.  The preventative treatments, for lack of a better word, SUCK!  They keep him awake way past his bedtime, but they also make him very moody.  His usual demeanor disappears and he starts arguing with everyone- family, friends, teachers.

Sometimes the preventative meds work and the cold will pass after a week like normal kids.  But it never seems to work that way in September.  Usually, the September cold turns into croup and we end up in the ER.  We’ve been pretty blessed this year that his cold has “only” turned into an asthma week.  His cough escalated to the point where he struggled to breathe and would get red in the face. Time to start the next level of meds.

This is the crazy kind of relief that only an asthma parent can really understand.  I always feel a bit relieved when it’s time to move him up to the Albuterol treatments.  Crazy right?  But I know that if that doesn’t help him in a few days, we’ll be off to the doctor to get him the high-dose steroids that will quickly knock out the cough. I also like the Drunk Squirrel version of hyper-boy much better than the Angry Bull version of hyper-boy.  But with either medicine, he struggles to sleep.  Or should I say, we struggle to sleep?

Eventually, October comes, and Sweet Boy starts to feel better.  We put the medication back in the cupboard and we both get some much-needed rest.  I try to play catch up at work and give my all to those sweet kiddos who missed their music day.   I feel like the teacher who flakes out every September, but I know I’m really the mom of a boy who needs me every September.

Photo by Andreanna Moya Photography

#5 – Ear tubes and … answers!

ear tubes

When we first met the Pediatric ENT at Connecticut Children’s Medical Center, my first thought was, “This GIRL is going to take care of my boy?”  She was probably 30 or so, definitely not pushing 40 like Old Mom here.  And she kept focusing on the croup instead of the ear infections.  Sweet Boy had already had eight ear infections and developed an immunity to Amoxicillin.  His pediatrician hadn’t mentioned that the four cases of croup could be a problem.  Clearly, she was too young to know what was really important.  She asked if she could do a bronchoscopy when she did the surgery to put in his ear tubes.  Sure.  He’s out anyway.

#1’s surgery was booked for six weeks later.  He got another ear infection in that time, and my exhaustion turned into some serious nastiness.  I was so stressed about getting his tubes.  They couldn’t do the procedure if he had an infection, and the infections just kept coming.

Surgery Day, the Ear Tubes go in

Six weeks passed and surgery day arrived.  Poor kiddo couldn’t eat breakfast and there really isn’t a good way to explain that to a 15-month-old.  They got my hungry, cranky boy prepped and we all glanced around the pre-op area.  Some of those kids were really sick.  Really, really sick.  So hungry boy screamed for food, and we just hugged him close, thankful that we were here for ear tubes and not something more.

About an hour after he went in, the doctor came out to talk to us.  I had to eat my humble pie.  The tubes went in nicely, but Young Doctor found two problems during that scope, and they really weren’t playing nice together.  Sweet Boy had acid reflux and a cleft in his larynx (ya, that’s pretty rare).  The 15 months of sleepless nights were because he was in pain.  It all started at 6 months because that’s when he started eating solid food (although we still call that day care “The Germ Factory”).  The ear infections were so frequent because his stomach acid just pooled in his throat and the fluid in his ears had no place to go.  He didn’t present like a typical reflux patient because the cleft kept him from vomiting (although after having #2, maybe #1 did have excessive spit up).

It all made sense.   He started taking reflux meds and FINALLY, he started sleeping (I think Handel himself may have heard me singing “Hallelujah”). She would repair the cleft in a future surgery.

Connecticut Children’s

To date, Sweet Boy has had three surgeries at Connecticut Children’s.  He has also seen the aero-digestive team for a team approach to his medical issues.  We have always been incredibly happy with his care at this hospital.  Whether its giving him a stuffed bear after surgery or a set of Duplo Blocks during a long day of 3 or 4 appointments, singing him “Five Green and Speckled Frogs” to calm him before a hearing check, looking for the monkey in his ear to check for infection or knowing that blue freeze pops really do fix everything when you are scared to stay overnight in a new place, everyone at Connecticut Children’s Hospital is amazing.

Summer vacation started a few weeks after his first surgery and this old mom enjoyed every moment with her toddler.  For three whole months, I was rested.  Then came #2….

Photo by Internet Archive Book Images

 

 

 

#3 – I’m too old for this

croup

At 6 months, baby boy started at a large center daycare.  After his first 2 days, he got croup.  It was the scariest cough I have ever heard.  He was clearly struggling to breathe.  He had croup four times in his first five months at daycare.  Test him for allergies they said.  It’s a bad croup year they told me.  His dad got croup as a kid they told me.  What they didn’t tell me was when to sleep.   If you haven’t experienced croup, the seal-like cough pops up at night and pretty much goes away during the day.


I had a new principal at work who was not impressed when I missed two days during the first week of school.  Thank goodness for relatives who watched him for the rest of the week.  It still killed me to go to work while my sick boy was at home.

The ear infections started too.  Every three weeks or so.  Amoxicillin is like water for the boy at this point.  He was so cute and playful during the day, but he just cried all night.

I resented the day care.  We nicknamed it “The Germ Factory.”  I waited 37 years for this child and they got all the fun time with him while I got all the sleepless nights.




My circle

I am very grateful to all of my friends and colleagues who were so supportive during those difficult months.  My mom would drive an hour to our house to watch the boy so I wouldn’t have to miss too much work.  My sister and I compared ear infection stories.  At work, my colleagues were always understanding when I was out and they were always there when I just needed to cry in the bathroom.  My husband always made sure I got a good nap on the weekend to recharge.   I found myself saying, “I’m too old for this,” at least once a week, and then changing my mind every afternoon at 4:00 when I picked up my smiling boy.

Sweet Boy and I were at the doctor’s office a few times each month.  Between work and doctor’s visits, we were busy all the time.  We needed some new answers, but we were too tired to do anything but accept the answers they gave us.

Photo by bbaunach